This site is for information, support and questions for any parent of a child missing digits.

Welcome to the wonderful world of being a parent to a child born not whole, but still so very perfect. The life of a child born or with an aquired limb difference is a path that is full of ups and downs.

I am a very fortunate Mom to a son born in 2003 with bilateral symbractydactyly (his right thumb is his only complete digit). He also has clinodactyly of both pinkies. He was diagnosed while I was still pregnant, but that didn't make the journey any more easy.

Tuesday, June 29, 2010

Thank you thank you thank you!!! Mikey's graduation went awesome!! I'm now the proud Mommy of a Grade 5'er and Grade 1'er!! I'm so very proud of you Liam and Mikey!!

There hasn't been too much going on, although for some reason Mikey has been a little more clingy and easily upset. Every morning I've woken and found him in bed next to me. Even when Liam is home (they share a room). I'm hoping it's just adjusting still from not being in school.

Mikey and I have an appointment on July 9th with his PT & OT to see firstly, another mom who is pregnant & found out recently that her unborn baby has a symby hand. Mikey is very excited to show her that he "can still do anything". I pray that he is able to put some of her fears and questions at bay. We then will be meeting with a specialist to try out different technologies to help Mikey with school. He will still be getting a laptop, but my main concern is they continue to encourage him to use both his hands as much as he can. If he tires or is not able to keep up with the workload, then the laptop will be brought in. It is most important though that he use his hands as much as possible. They've not been an impediment in anyway thus far and I think it's important that he maintain the incredible function he has now.

My surgery has been rescheduled (for the third time!) now for July 14th. Just like before, I will have 2 weeks off and in that time I am hoping to be able to update Mikey's blog. We will have a busy July, as Guy's kids will be coming to stay with us! Cloe is coming all the way from New Brunswick and we've not seen her since last August! Since fate didn't bless me with a biological daughter, I am forever grateful to have her in my life. She is the most teriffic "step-daughter" to me. She is also so amazing with Liam and Mikey and they are super-excited she's coming too (albeit I think she is Liam's first crush!). Guy's son Xander will also be with us and although we get to see him a little more often, it's great to see how well our three boys are coming along together. Everyone is very excited that they will see Mikey in the Capital Ex parade representing the Edmonton & area War Amps CHAMPS!!!

Hope everyone has a TERRIFIC Canada Day! Our boys will be decked out in matching outfits (as they always are for this birthday party!) and I will be sure to share pictures!

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